A Diet to Die For! Breast Cancer in Canada.

March 3, 2009

To Chemo or Not to Chemo, That is the Question.

I just got back from seeing Dr. Chemo and as pleasant as everyone is at the clinic, it’s not an appointment I look forward to.

This is probably my third or fourth “follow-up” with Dr. Chemo. The poor guy … he’s such a mellow doctor and here I come flying in at a million miles an hour with millions of questions and probably look like a neurotic nutcase!

When I first saw him at the end of December, 2008, he gave me information on a treatment cycle called “FEC Chemotherapy” [link opens UK cancer site] — the FEC stands for the 3 types of injectionable drugs used during a cycle — and “cycle” or “regimen” stands for the drugs given every 3 weeks typically over a certain period of time, i.e. Dr. Chemo recommended I do 6 cycles of FEC which lasts approximately 15 weeks.

Confused yet?

I found out today that I do indeed have “node-positive breast cancer” [link opens a PDF document that is very self-explanatory]. This is news to me! Two of my lymph nodes had cancer cells which means that I probably should seriously consider chemotherapy as a preventative measure to hopefully save my life.

Right now, I’m told I have approximately a 75% chance of survival — add chemotherapy for a few short months of my life and my chance for survival jumps to 90%-95% — an easy decision, right? Wrong! I still have lots to think about … and if I’m really sick from chemo, how on earth am I expected to pay my bills? Anyway, it really isn’t an easy decision, and yes, I realize that I’m playing Russian Roulette with my life.

Oh, and I’ve lost a few more pounds  for a total of 15 pounds so far …

I also don’t feel sick, nor do I look sick, and most people who see me say I look healthy … I guess I”m a better actress than I thought :)

Towards the end of the appointment, I’m sure he notices how squirmy I am, he says that I have another chemotherapy option called “TC chemotherapy” [link opens eChemotherapy site and here's another discussion about it at MayoClinic's web site].  I only need 4 cycles for a total of 9 weeks of treatment. I have to look it up, but it certainly sounds more promising than the prospect of being bald and nauseous for almost 4 months. I know I’d wear my bald proud (no wigs for me!) but man …

I ask Dr. Chemo if he recommends a cold cap or ice cap — I’ve read somewhere that these sometimes can prevent hair loss during chemo — he says it’s an old wive’s tale, so I won’t add any links to information on them. If you’ve used them and can absolutely say it worked for you, feel free to comment.

So I still need to answer my own question: to chemo or not to chemo.

I just got back from seeing Dr. Chemo and as pleasant as everyone is at the clinic, it’s not an appointment I look forward to.

This is probably my third or fourth “follow-up” with Dr. Chemo. The poor guy … he’s such a mellow doctor and here I come flying in at a million miles an hour with millions of questions and probably look like a neurotic nutcase!

When I first saw him at the end of December, 2008, he gave me information on a treatment cycle called “FEC Chemotherapy” [link opens UK cancer site] — the FEC stands for the 3 types of injectionable drugs used during a cycle — and “cycle” or “regimen” stands for the drugs given every 3 weeks typically over a certain period of time, i.e. Dr. Chemo recommended I do 6 cycles of FEC which lasts approximately 15 weeks.

Confused yet?

I found out today that I do indeed have “node-positive breast cancer” [link opens a PDF document that is very self-explanatory] - this is news to me! Two of my lymph nodes had cancer cells which means that I probably should seriously consider chemotherapy as a preventative measure to hopefully save my life.

Right now, I’m told I have approximately a 75% chance of survival — add chemotherapy for a few short months of my life and my chance for survival jumps to 90%-95% — an easy decision, right? Wrong! I still have lots to think about … and if I’m really sick from chemo, how on earth am I expected to pay my bills? Anyway, it really isn’t an easy decision, and yes, I realize that I’m playing Russian Roulette with my life.

Oh, and I’ve lost a few more pounds  for a total of 15 pounds so far …

Towards the end of the appointment, I’m sure he notices how squirmy I am, he says that I have another chemotherapy option called “TC chemotherapy” [link opens eChemotherapy site and here's another discussion about it at MayoClinic's web site].  I only need 4 cycles for a total of 9 weeks of treatment. I have to look it up, but it certainly sounds more promising than the prospect of being bald and nauseous for almost 4 months. I know I’d wear my bald proud (no wigs for me!) but man …

I ask Dr. Chemo if he recommends a cold cap or ice cap — I’ve read somewhere that these sometimes can prevent hair loss during chemo — he says it’s an old wive’s tale, so I won’t add any links to information on them. If you’ve used them and can absolutely say it worked for you, feel free to comment.

So I still need to answer my own question: to chemo or not to chemo.

Update: April 3, 2009

I’m quite positive I will not do the chemo — Dr. Chemo gives me an additional 3 months to think about it, or talk with a social worker or psychologist. He’s given me an appointment for April 27th and since I still have not heard from a therapist, it’s likely I will cancel the appointment.

2 Comments »

  1. Update: March 30, 2009

    I had yet another follow-up with Dr. Chemo and because I still have gangrene, they can’t start chemo.

    This is now 2 months after surgery and I think I’m going to pass on chemo.

    There must be a reason or a sign that I’m unable to start chemo — and I think I’ll follow my instincts again — they have not failed me yet!

    I also find out from the oncology nurse that since I have homecare, Bayshore or CCAC is apparently to provide me with a plastic card (similar to a health card) that will cover all costs. Although OHIP covers the majority of expenses, there are items (saline, for example, which is expensive) that are not covered. It will also cover the costs of the chemotherapy drugs which I’m told are extremely high.

    So here I am 2 months after surgery and 6 months into my cancer journey and I’m still finding out information I’ve never heard of.

    Comment by CancerSurvivor — April 8, 2009 @ 12:13 PM

  2. Oh, and something I don’t think I’ve mentioned before …

    Chemotherapy isn’t necessarily something that absolutely has to be done.

    There is some new regulation from the Ministry of Health (Ontario I believe) that says that anyone diagnosed with cancer needs to be referred to a cancer centre within 2 weeks of diagnosis.

    So if I’m understanding this regulation, it’s not that I MUST do chemo; it’s that I’m given the OPTION.

    Could this mean that there are thousands of people undergoing chemo when they didn’t know they had the option to say no?

    I can’t be the only one who actually asks questions of the medical community — if I am, it’s definitely a sad state of affairs for our Canadian health care system.

    Comment by CancerSurvivor — April 8, 2009 @ 12:17 PM

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